Data Management And Sharing System of China National Clinical Research Center for Neurological Diseases

• Start At：2022-08-01
• End At：2027-08-01

• Patients：10000
• Sites：23

To establish a national multicenter disease registry for idiopathic central nervous system inflammatory demyelinating diseases (IDD) in China, and to establish a unified and standardized follow-up management process and treatment guidelines for patients with idiopathic inflammatory demyelinating diseases (IDD); to provide information on disease status and disease progression characteristics of IDD patients in China, and to provide a basis for further exploration of real-world data on disease prognostic markers and treatment response and safety.

A prospective observational (non-interventional) national multicenter cohort study to collect clinical data from IDD patients who have signed informed consents, to routinely and regularly follow up IDD patients on multiple clinical indicators, and to assess the clinical outcomes.

At least one diagnosis of IDD disease (clinically isolated syndrome/multiple sclerosis/neuromyelitis optica spectrum disorder/MOG antibody disease/acute disseminated encephalomyelitis) is required; no requirement for age and sex; informed consent needs signed